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Children with Special Needs
| Title: | Association of University Centers on Disabilities | | URL: | http://www.aucd.org | | Comment: | The Association of University Centers on Disabilities is a 501(c) non-profit organization that promotes and supports the national network of university centers on disabilities, which includes University Centers for Excellence in Developmental Disabilities Education, Research, and Service (UCEDD), Leadership Education in Neurodevelopmental and Related Disabilities (LEND) Programs and Developmental Disabilities Research Centers (DDRC). The website includes a directory of state contacts for these three Centers and links to related resources. |  | |
| Title: | Center for Evidence-Based Practice: Young Children with Challenging Behavior | | URL: | http://challengingbehavior.fmhi.usf.edu/index.html | | Comment: | The Center is focused on raising the awareness and implementation of positive, evidence-based practices and building an enhanced and more accessible database to support those practices. The website provides information for both research and training, as well as a schedule of upcoming presentations and workshops around the country. | | |
| Title: | Child Care Law Center | | URL: | http://www.childcarelaw.org | | Comment: | The Child Care Law Center (CCLC) is a national nonprofit legal services organization that uses legal tools to make high quality, affordable child care available to every child, every family, and every community. We are the only organization in the country devoted exclusively to the complex legal issues that affect child care. Our diverse substantive work encompasses public benefits, civil rights, housing, economic development, family violence, regulation and licensing, and land use on a local, state, and national level.
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| Title: | Child Care Plus: The Center on Inclusion in Early Childhood | | URL: | http://www.ccplus.org | | Comment: | Website and resources devoted to inclusion of children with disabilities and challenging behavior. | | |
| Title: | Council for Exceptional Children | | URL: | http://www.cec.sped.org | | Comment: | The Council for Exceptional Children (CEC) is the largest international professional organization dedicated to improving educational outcomes for individuals with exceptionalities, students with disabilities, and/or the gifted. CEC advocates for appropriate governmental policies, sets professional standards, provides continual professional development, advocates for newly and historically underserved individuals with exceptionalities, and helps professionals obtain conditions and resources necessary for effective professional practice. This website provides a lot of information about exceptional children and the issues they face. | | |
| Title: | Devereux Early Childhood Assessment Program | | URL: | http://www.devereux.org | | Comment: | The DECA Program is a strength-based assessment and planning system for young children. The 5-step system was designed to support early childhood teachers, mental health professionals, and parents in their goal of helping children develop healthy social/emotional skills and reduce challenging behaviors. The website provides information on the program steps as well as training and resource information. | | |
| Title: | Family Village | | URL: | http://www.familyvillage.wisc.edu/index.htmlx | | Comment: | A global community that integrates information, resources, and communication opportunities on the Internet for persons with cognitive and other disabilities, for their families, and for those that provide them services and support.
Includes informational resources on specific diagnoses, communication connections, adaptive products and technology,adaptive recreational activities, education, worship, health issues, disability-related media and literature.
Note: Parent's of children with special needs have recommended this resource for parents -- written at the parent level.
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| Title: | Family Voices | | URL: | http://www.familyvoices.org | | Comment: | Family Voices is a coalition of families of CSHCN and their caregivers, professionals, and friends whose lives have been touched by these children and their families. This site is a service supported by a cooperative agreement between MCHB, RWJ foundation, the David and Lucille Packard Foundation and The National Policy Center for Children with Special Health Care Needs. It provides information about issues affecting CSHCN and their families, weekly news updates, project reports and other resources. | | |
| Title: | Head Start Information and Publication Center: Caring for Children with Chronic Conditions | | URL: | http://www.headstartinfo.org/publications/children_cc/ccccont.htm | | Comment: | This site has an excellent resource entitled "Caring for Children with Chronic Conditions" which would be very helpful in training child care staff and parents. Included are modules on understanding chronic illnesses and the essential principles of caring for children who have such illnesses. Each module also contains activities for use in presentation of the material. | | |
| Title: | Institute for Child Health Policy | | URL: | http://www.ichp.ufl.edu/ | | Comment: | The overall mission of the Institute for Child Health Policy is to research, evaluate, formulate, and advance health policies, programs, and systems that promote the health and well-being of children and youth. The Institute provides an intellectual environment within which faculty, staff, and students are able to develop, synthesize, and apply knowledge to health-related systems and outcomes for children and youth. | | |
| Title: | National Braille Press: ReadBooks! | | URL: | http://www.nbp.org/ic/nbp/readbooks | | Comment: | A national children's braille literary program, ReadBooks! aims to encourage families with blind children to read print/braille books together to foster a love of books and reading at an early age, expose parents of blind preschool children to braille as an effective method of reading and writing, and introduce visually impaired children to a means of reading independantly. ReadBooks! offers a free book bag, filled with braille books and activities, to blind children, ages birth to 7. | | |
| Title: | National Center on Birth Defects and Developmental Disabilities | | URL: | http://www.cdc.gov/actearly/ | | Comment: | This site lists important social and behavioral milestones for children ages 0 to 5 to help parents and caregivers detect developmental disabilities early. | | |
| Title: | National Information Center for Children and Youth with Disabilities | | URL: | http://www.nichcy.org | | Comment: | NICHCY is a national information center that provides information on disabilities and disability-related issues with a special focus on children and youth (birth to age 22). Information and website available in Spanish. | | |
| Title: | National Organization for Rare Disorders | | URL: | http://www.rarediseases.org | | Comment: | The National Organization for Rare Disorders (NORD) is a unique federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service. | | |
| Title: | National Policy Center for Children with Special Health Care Needs | | URL: | http://www.jhsph.edu/wchpc/projects/cshcn.html | | Comment: | This website provides information about new research projects in the area of children with special health needs, measures of quality of health services for children with special needs,
latest policies for children with special needs, and recent publications on health care for children with special needs (available online). | | |
| Title: | Research and Training Center on Family Support and Children's Mental Health | | URL: | http://www.rtc.pdx.edu/ | | Comment: | Site provides research information on child care services and outcomes for children with emotional and behavioral disorders. Current research includes a) development of a research-based mental health program that can be used in child care settings and b) improving access to inclusive child care for children with emotional and behavioral disorders. On the home page, select Research in the top menu bar. | | |
| Title: | Rifton Equipment | | URL: | http://www.rifton.com/r/index.htm | | Comment: | Rifton Equipment's goal is to provide quality walkers, standers, chairs, tricycles, bath chairs and toileting systems that can be adjusted to meet the needs of as many as possible. Adaptive equipment which helps normal positioning can open a whole new world for children and adults with disabilities. | | |
| Title: | Special Education Resources on the Internet | | URL: | http://seriweb.com/ | | Comment: | Site provides an extensive collection of Internet accessible information resources. It is not specific to children but most of the references are relevant. Includes the following categories: General Disability Information, Disability Products, Legal and Law Resources, Special Education Discussion Groups, Mental Retardation, Physical and Health Disorders, Learning Disabilities, Attention Deficit Disorder, Speech Impairment, and Vision Impairment. | | |
| Title: | The Arc of the United States | | URL: | http://www.thearc.org | | Comment: | The Arc of the United States advocates for the rights and full participation of all children and adults with intellectual and developmental disabilities. Together with our network of members and affiliated chapters, we improve systems of supports and services; connect families; inspire communities and influence public policy. From this site you can search for local chapters, which provide a variety of services to children and adults with developmental disabilities. | | |
| Title: | The Program for Infant/Toddler Care | | URL: | http://www.pitc.org | | Comment: | This site offers some resources and free training guides for inclusion and care of children with special needs. Some information available in Spanish. | | |
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